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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 31
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Hi it must be this cold weather but absolutly all my joints hurt hands ,ankles,knees,hips,spine etc etc i have a bad spine anyway which is waiting for more treatment but i just cant seem to get warm during the day no matter how many layers of clothes i wear and the only place i want to go is take my oramorph and get tucked up in bed .But i have a three yr old and a twelve yr old so thats not possible.I am on methotrexate plaquinel and etenercet and for the pain matrifen patches oramorph and paracetamol i just wish i could hibernate like a hedgehog i saw on tv tonight .Does anyone else feel the same i live in Norwich and we have snow tonight so i am also afraid of falling and slipping on the ice what a cafuffel as My children would say HELP 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Cazza,
Sorry to hear that you're in so much pain, and agree the cold does seem to make our condition worse. On top of everything else, you're not coming down with a cold are you? The only thing that I can suggest to help you warm up inside is a hot toddy, and perhaps a nice hot curry - warm and comforting.
Re the spine, I really feel for you. It seems s if a number of us here on the forum are suffering with our backs, mines been a nightmare and I'm now waiting to hear back from my MRI scan.
Take care and hope you warm up soon,
Love,
Barbara
XXXXX
PS even though you are feeling cold do check your temperature
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Sorry to hear things are still not settling for you at all Cazza - has anyone suggested steroids? Either jab or oral. I don't know if you can take them with etanercept but sounds like you need something to help you cope - especially with children. I had a steroid jab a couple of weeks ago and the relief was immense. Don't just try to bear it - ask some questions - either rheumy helpline/nurse or GP.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Cazza,
Sorry to hear you are still suffering, Julie's suggestion of a steroid jab is a good one.
I think we all find it hard when it is so cold, and can especially identify with the fear of falling in the snow.
I find it difficult to warm the house up when it's freezing outside and would love to spend the winter in a warm bed! It doesn't help when it's dark most of the time either!
Hope you can get something to help.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Dear Cazza,
I am so sorry to hear of your continued pain. It is a real suffering for you.
It is so incredibly difficult having to be awake and aware ALL time time for the children- there are so many times during the day that I just dream of being able to go upstairs and sleep!
I even fall asleep reading books to them nowadays and constantly shiver in our kitchen!
Awful!
Much love,
Amanda
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Dear Cazza,
Telephone your Rheumie nurse or your GP and ask for a depot injection of steroids for your pain. You can't tolerate that and look after children.
As for the cold. I have tucked myself up in this room with a heater as well as the central heating because hubby has been moaning about the heat in the house. I can't get warm despite being over dressed for indoors. To be truthful, I am never warm even in the heat of the summer. No prizes for guessing why we all feel the cold more than most others!
Hope that you feel better soon with the help that you need.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 11/28/2009 Posts: 238 Location: North London
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wow that's a heavy cocktail of drugs. my pennorth would be: have a bloody hot sauna every day for an hour. treat it as seriously as a medical treatment. book it in, arrang childcare, spend the travel time and money. go get really seriously hot at least once a day until weather or immune system improve.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 690
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Great advice Franky, I'm thinking of going to the sauna too.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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As long as you haven't got probs with high BP Barbara. if you have, you need to be careful not to stay in for very long. I used to go and it was GP who advised on this.
Lots of love
Jeanxxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 58
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hi ya,
i'm in the same boat with painfully joints.if i take any more pills i'll rattle. oh the joy of ra.
keep smiling girl.
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Rank: Advanced Member
Groups: Registered
Joined: 12/6/2009
Posts: 81
Location: norfolk
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Hi,
So sorry you are feeling so dreadful. I treated myself to an electric overblanket and when I feel lousy I go to bed and get really warm.
We seem to have got the worse weather in Norfolk at the moment so lets help it disappears soon.
Warm and gentle hugs
Sue
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 31
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hi Gp has incresed my steroids to 6 per day for the next week so i can manage and enjoy christmas.Today i am so tired i feel like i only have enough energy to breath and thats all i crawled upstairs and dosed off when my little boy watched his tv and went to my bed at 6 leaving hubby to put the children to bed as i feel awful today
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 31
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here again still suffering with spine/back pain i am using all my painkillers plus oramorph for the breakthrough pain.I have tried not to let it spoil my families christmas and put on a stiff upper lip which i suspect you are all good at by now although it has not been easy.I am in bed at present writing this as this is one of the only positions i can get some comfort from th e pain if still bad in the morning i may phone doctors again as this has spoilt MY Christmas this bloody RA I hate it
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hi Cazza
Hope you are warming up a bit. I would stay wrapped up inside for a few days but definitely ring gp / out of hours if pain is unbearable - dont just try and put up with it, i hope things improve for you but if not get some help wont you.
Take care, Cazza ~ luv Liz xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 235
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Cazza, I hope that you are feeling better. Being cold all the time is horrid. Hot baths can help and the electic blanket is a good idea. Plenty of hot drinks and food are important and lots of layers help.
Take care
Deb x
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Rank: Member
Groups: Registered
Joined: 12/8/2009
Posts: 11
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Hi Cazza in a way reading all the replys has made me feel better as today I have pain in all my joints and where I am surppose to have an op on my knee that hurts like hell. I am told I live with a second condition which makes me feel my arms are being crushed in a vice all day long and every now and again is hit with a hammer, I am told by the pain clinic in St Thomas's that if there was a scale of 1 to 10 I would be a 12 . I have had a spinal cord fitted at the cost of 15 grand (not to me to NHS), and it worked I was without pain in the first time for 3 years but I got meningitis and they had to take it out, and I cried and cried as I knew the pain would come back. Why am I telling you this is because I was then sent to pain management and it helps with both lots of pain. Today the RA is just like you I am cold , I have pains all over me and can hardley walk, I am going to sit down and say sod it. ( I live on my own) IN anhour I will prepare part of my dinner and about three 3 pm get the rest ready and at 5pm cook. I know you have kids just you sit down with a hot tody a blanket over you and tell the kids they have got to play near you as mummy is not well and say sod the rest of the day, when hubby comes home send him out for fish and chips, or a take away.don't cook or do anything.
Love David
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Cazza, hope you're warming up and the pain is getting less. Have you tried the heated wheat and lavender cushions? I got one for Christmas and placed one on the nape of my neck and one placed in my lower back - great for helping with the pain and getting warmed-up, and didn't have to use as much Tramadol. Agree with David advice, and think you need to be referred to the pain clinic and if a referral is not forthcoming I would ask for a second opinion.
Hi David, sorry to hear that you're going through so much pain and have to manage this on a daily basis. Hope you warm up and get some relief from the pain soon.
Lots of love,
Barbara
XXXXX
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 31
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i am sitting in bed with my heat pad on and have had all my pain meds,a glass of sherry and oromorph .The children have gone out with hubby so i have a pear cider to drink and am tucked under my duvet so with all this medicine and alchol i should get rid of the pain and masybe some sleep aswell
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Way to go, Cazza!
Hope you'll be feeling much better after that concoction!
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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Hi Cazza
Hope all that brings you some relief and that you get some sleep.
Anthea x
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